Fundraiser held for ill baby Louie (From Sutton Guardian)

Fundraiser for ill baby Louie Bull from Sutton

6:00am Thursday 21st March 2013 in News By Sophia Sleigh, Reporter

Family and friends of a baby with an incurable genetic disease have been raising funds for the expensive equipment he needs.

Louie Bull, from Stonecot Hill, was born with the rare and very serious condition, Spinal Muscular Atrophy with Respiratory Distress (SMARD), which causes muscles to waste away.

Louie will be on ventilation for the rest of his life, and has scoliosis, deformed hands and feet and doctors say he will eventually end up paralysed.

On Saturday, March 16, friends and family gathered at Asda in Sutton High Street to sell cakes and raise funds for Louie.

To donate visit: actsma.co.uk/home/page/louie.