The family of a girl whose epilepsy is so severe she must wear a protective helmet in case of sudden debilitating seizures will hold a charity fundraising event on bank holiday Monday.

The Nash family, of Sherbrooke Way, in Worcester Park, is hosting the event in aid of the Epilepsy Society, after Lyla Nash, three, whose condition was diagnosed in April last year.

Lyla suffers tonic-clonic and absence seizures, and her condition means that she needs 24-hour care and must wear a helmet for most of the day to protect her if she has a sudden seizure. Her father, Wayne Nash, 37, has had to leave work to be a full-time carer.

Her mother, Tracey Nash, 38, said: “Lyla was in the front room with her two sisters, Alarna and Kayla, when she had her first seizure.

“They said that she was doing a funny thing, but when I saw what happened I phoned the ambulance.

“When we got to St Helier she had a worse fit and had to stay in hospital for a week.

“But Lyla just gets on with it, she was born with the condition so she knows no different.

“What happens now is that she reminds me to put her helmet on when we are about to go outside.

“After epilepsy was diagnosed we have had to make some changes to our lives.”

Mrs Nash added that money raised on Monday’s charity fun day will go towards the Epilepsy Society, which has supported the family.

She said: “I got in touch with the society because I didn’t know anything about the condition, I had never seen an epileptic fit before.

“The society has been really supportive and we wanted to raise money as a way of saying thank you to them.”

The family has further fund-raisers planned.

Mrs Nash said: “Wayne will be skydiving in June and will be climbing the Shard next year.

“We’re grateful for the support that our family and the charity have given us and this is our way of giving something back.”

The charity fun day will be held at North Cheam Social Club, 658 London Road, on Monday, from 11am to 4pm.